Information and understanding are vital. The oncology team tasked with treating a child are the ‘one stop shop’ for questions related to your child’s cancer journey and are there to help you every step of the way.
Hospital staff can also help with just about anything – no question is too big, silly or out of place.
It’s also a good idea to have your phone audio recording your meetings with the oncology team either, so you can digest all the information later at your own pace.
Don’t be afraid to ask for help from those around you. Whether its cooking, cleaning or taking care of the kids, don’t hesitate! It always helps to be open with them for your own sake and support. Seeking professional help is always a good idea for further support.
Beyond looking after your sick child, your highest priority is your own physical and mental health. There’s nothing wrong with taking time out for your own needs. Be sure to make time for your partner, children and friends as close relationships are key in tough times.
As for talking with your child and/or children, the key is to be open, positive and honest. A child with cancer that’s old enough may have feelings about certain treatments.
Brothers and sisters
Having a sibling with cancer can be an emotional and confusing experience. Seeing them in the hospital, acting differently, or being in pain can be upsetting.
You might also feel lonely without them to play with or guilty for being healthy. It’s natural to feel jealous if they get more attention, but that’s okay. Make sure to talk to your family, teachers or counsellors who will support you.
Cancer isn’t contagious, so you can still hug and play with your sibling without worry. If you’re asked to donate stem cells for their treatment, the doctors will guide you through it, but not being a match isn’t your fault – it’s just how your body was made.